Belgian Cancer Registry on FHIR - Local Development build (v0.1.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

Models

Models

This IG defines 9 logical models in three groups. Each model maps to a specific BCR artefact (a form, a published dataset, or a screening-pathway sample feed).

Form-level models — Bijlage 55

The four forms below collectively make up the standard cancer registration submission. The main form is universal; the three vervolg forms are appended only when the relevant condition holds (breast tumour / MOC convened / subsequent follow-up event).

Model	Source	One row per	Documentation
BCRCancerRegistrationForm	Bijlage 55 main	Cancer case	open
BCRBreastTumourSupplement	Bijlage 55 vervolg 1	Breast cancer case	open
BCRMOCForm	Bijlage 55 vervolg 2	MOC convocation	open
BCRFollowUpForm	Bijlage 55 vervolg 3	Follow-up event	open

Notable shape decisions:

• BCRCancerRegistrationForm.treatmentEpisode is a repeating BackboneElement — the form has 5 chronology rows, but the model is unbounded so a HIS-derived submission can include the full timeline.
• BCRBreastTumourSupplement.molecularMarker carries tumourIndex (1 or 2) to capture the multifocal column on the source form.
• BCRBreastTumourSupplement.molecularMarker.result is a CodeableConcept, not a code, because each marker has its own result vocabulary (ER tri-state vs HER2 IHC 0/1+/2+/3+ vs gene-mutation 4-state).
• The MOC and follow-up forms have different reason code lists (BCRMOCReasonVS vs BCRFollowUpMOCReasonVS) — semantically distinct, deliberately not unified.

Published research dataset

The "Cancer in Belgium" dataset is BCR's external-facing research export. It is a derived view over the form-level submissions plus registry-wide processing (pseudonymisation, vital-status reconciliation, age-category bucketing, tumour-sequence computation).

Model	Source	One row per	Documentation
BCRCancerCase	Cancer in Belgium - metadata v2 (May 2025)	Cancer case	open

Coverage: ~30% of the standard Bijlage 55 universe. The published dataset omits patient identity, full treatment chronology, MOC details, all Tier 2 disease-specific extensions, and all Tier 3 NIHDI project data. See Data flow for why.

Cyto-histopathology screening register

These four models cover the lab-side submissions for the breast / cervical / colorectal screening programmes. Granularity is per sample, not per case, and samples are submitted directly by pathology labs over sFTP — entirely separate from the hospital registration stream.

Model	Source	One row per	Documentation
BCRChpSample (abstract)	Common core of the three CHP supplements	— (abstract)	open
BCRChpBreastSample	Cyto-histopathology register breast - metadata	Breast lab sample	open
BCRChpCervixSample	Cyto-histopathology register cervix - metadata	Cervical lab sample	open
BCRChpColonSample	Cyto-histopathology register colorectal - metadata	Colorectal lab sample	open

Why a shared abstract base: all three CHP supplements share a 9-field core (sample-collection date / year, demographics, basis-of-diagnosis, histology+behaviour, sample location, lab region). The disease-specific children add only the differentiating fields:

• Breast: sampleCategory, laterality, dataConfidenceLevel
• Cervix: hpvTestResult, hpvType (0..*), specimenQuality
• Colorectal: sampleCategory, dataConfidenceLevel

What's NOT modelled (and why)

Tier 3 NIHDI project module	Why
Hadron therapy registration	A separate manual exists (rp_hadron_wbcr_manual_eng_2025.pdf) but has not yet been processed for this IG.
GEP Breast	Field-level spec is not publicly available; lives inside WBCR.
NTRK inhibitors, SRT, BE-RFA, complex GI surgery, paediatric late effects	Same — internal to WBCR, no public field-level documentation.

These modules are out of scope for v0.1.0 of this IG. They can be added if and when their specs are made available to BCR data partners.